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When the Bugs Aren’t Real

by James Hubbard, M.D., M.P.H.

I never heard of this in medical school, so when I saw my first patient with delusional parasitosis, I was quite bewildered. Here sat a well-dressed, anxious looking guy, scratching all over, who said he scabies and handed me the proof in a tissue. It was a flake of skin.

“And look, Doc. See the bites.” I looked and saw where he’d been scratching—digging and clawing actually—into his skin. But no bugs of any sort.

I got the local dermatologist to see him. I mean he had to have something I was missing. The dermatologist checked him thoroughly and diagnosed delusional parasitosis. I had to look it up.

Delusional parasitosis is when a person is convinced, beyond reason, beyond all evidence to the contrary, that he is infected with some sort of biting bug or parasite.

“What’s the treatment?” I asked the derm.

“There is none. Even the psychiatrists don’t know what to do.”

In those many years since, I’ve seen a few more cases, and it’s always the same. There’s nothing there. Usually, they’ve been to many, many doctors before me. “And nobody helps me, Doc. A bunch of quacks, they are.”

Books adIn fact, some have told them the truth, but they never, ever believe it. Other doctors have just gone along with the delusion and given them some prescription to get them out of the office. Because no matter what you say, or what you do, or what the proof to the contrary is, this person is going to stay convinced he has parasites.

I keep writing he, but actually the problem can occur in either sex. Often drugs, like methamphetamine or cocaine, play a role. But many times delusional parasitosis happens in an otherwise normal person. Sometimes the person is so convincing that they’ve got friends and family believing. Family members may even get the imaginary bug.

Since stress is often a trigger I expect delusional parasitosis to be more of problem during prolonged disasters, which is why I bring it up here.

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Delusion or Reality?

Fortunately, there are some prescription medicines that lately have been found to work—of course, if you can ever convince the person to take the meds. They’re antipsychotics best prescribed by someone, like a psychiatrist, who knows their best dosages and what to do about side effects.

But before medications, the first thing that has to be done is to rule out actual parasites—or anything that could be biting. With blood tests and a physical exam, things that can cause itching, like uncontrolled diabetes, thyroid problems, vitamin deficiencies, dry skin, and skin diseases, need to be ruled out or treated.

With no medical help available, it may be next to impossible to rule out everything. And delusional parasitosis is rare. But since I’ve been writing about itchy parasites lately, I just wanted you to know it’s a possibility. And unless it’s drug related, nothing you do is going to help.

 

Photo by Carlos Ferriera on Flickr.

  • Monica Bratcher

    I did an orientation at work a few weeks ago and since I had two people I was doing the orientation for, one of the workers sat next to me on the booth. This would normally not be a problem but about a week ago she called in to work saying she has scabies! I sat next to her for an hour, now I am so worried I have scabies. I have been feeling ichy but I do not know if it is because I am so paranoid. Does this article mean if I do not have scabies that the iching might not go away?

    • http://thesurvivaldoctor.com/ James Hubbard, MD, MPH

      Monica,this article has nothing to do with you. When I, or one of my staff, see a patient with scabies, we often feel itchy. Yes, it’s psychological (we really don’t have scabies) but it goes away as soon as we get our minds on something else. It’s very unlikely you got scabies from sitting next to someone. You usually get it from something like sleeping in the same bed. But, still, it is possible. If you continue to itch, see a doctor. Also read my article on scabies.

  • just2smart

    Doctor Hubbard I would seriously consider your sources and I at least commend you to end your conversation topics with the request for other information a prime example:
    ************************
    These are but a few ways to disinfect water. None of these methods
    removes toxins, poisons, or any chemicals from the water. I don’t know
    of any improvisational method that does.

    Have you tried any of these methods? How did the water taste? I would
    love you input, and other ways you’ve tried for disinfecting water.
    **********************************
    this was copied from your survival techniques…the making of a sand and charcoal filtration system will remove most toxins and heavy metals… I am not so sure on the chemicals however I would be looking into it myself…
    I don’t mean to be disrespectful and I am happy to see a doctor actively participating in a blog where much information can be passed shared and investigated please understand that it is not criticism as much as a challenge to look deeper. you are on your way to become a better physician for it and I have hope that you will open your mind to the effects of artificial influences rather than what you learned from the traditional doctrines.

  • just2smart

    Has anyone considered it may be a mold or fungal issue I am sure doctors can see mold and fungus with their bionic eyes they got from some ivy institution… or that a skin scraping would reveal some different results… oh and to- kim (below) Did you ever think that it might be mites…dust mites and maybe your poor sister in law has developed an allergy to them … no just dismiss her as crazy…. just like the dumb ass med student above …so eager to place the blame that they are drug addicts… (which may be partially true) I will explain … certain elements pose an invisible threat to ones body causing an allergic reaction these reactions may be due to a fungal/mold,parasitic or even a heavy metal issue now lets look into the first… if one has these symptoms and they seem to be contagious…this may be the cause for fungus/mold is highly contagious by means of aerosol effect (sneezing and coughing) even if one covers their mouth the fungus is spread through touch… fungus/mold will live and thrive on a/c / furnace coils and spores can travel for miles.

    Second lets consider parasites… I am sure the CDC would want you to know that they have a classification of what they are calling “Neglected diseases” and that a majority of these diseases are not reported in the united states simply because they are dismissed as parasitic psychosis. they include but are not limited to “Lyme, Taxoplasmosis, Morgelons, Legionares, disease….etc. The doctors hailing from areas where these diseases are more often diagnosed are the ones who can recognize the symptomology because they are aware and they don’t have a GOD complex and influence of the mainstream american principles. so if you feel the creepy crawly’s… My suggestion to you is to get educated and challenge your doctor to do his job. or seek medical attention abroad.

    By the way most of the “Neglected Diseases” are being diagnosed in late stages due to the lax approach doctors have to seeking the cause and masking the effect.

    Thank you CDC that still refuses to acknowledge the Lyme disease
    pandemic, its worse than aids in relation to how many people are infected. Isn’t it uncanny how nobody wants to admit when they are wrong. I have symptoms of some sort of infestation/parasitic/fungal issues and all my doctors are concerned with is giving me a prescription to mask the symptoms… I have noticed the drug reps are the stripper model types and I have heard stories (i know its here-say,but….) of doctors getting vacation kickbacks and certain representative perks (lets just say the kind you get in a private room of a strip club) but I guess its legal in Bangkok, or where ever the free trip is destinated. I also heard that this is done like a contest who ever can sell the most in the shortest amount of time (also if you get people on a prescription plan)… what this presents to me is a medical industry running a muck… where we just keep people sick by just masking the symptoms and never addressing the root cause and a medical prescription/prostitution ring… oh my has my country gone to the capitalist gutter.
    I have even heard my doctor being challenged by his Pharm. Rep. when he was asked has he started anyone on a certain program and he replied no he hasn’t not yet…and the rep in a inadvertant reply said “Why not?!” right in front of me… when he entered my room I asked him “does she run your practice too” and “maybe she should see me … I can cut out the middle man(pointing the finger at him).

  • Kim

    I would like to know how to convince someone that they have delusional parasitosis? I live with my sister-in-law and she has been suffering with this for 3 years. In 2011 she was hospitalized for 3 days (in a psychiatric hospital)and was prescribed risperidol. She took the medication for about 2 weeks and stopped because she said it wasn’t working. I am talking about a 47 year old, normal white woman, who is a professional (software engineer) who was earning about $125,000 and lost her job because of this. She would spend hours in the bathroom at work picking things off her clothes that she said was coming from the heating vents in the ceiling. She is constantly picking lint from her clothing trying to convince me that its bugs. She vacuums for hours and hours. She swears this is environmental and that clothing manufacturers have infestations in their factories. It is exhausting and frustrating for me, I can only imagine what its like for her. I am 100% know that this is delusional parasitosis but to convince her is impossible. Her family, boyfriend, and the few friends she has told have had enough of this. Her b

    • http://www.thesurvivaldoctor.com James Hubbard, M.D., M.P.H.

      Kim, unfortunately this is very hard to treat and best done by a psychiatrist who has some experience dealing with this. I’d call around, perhaps try a medical university center if that’s available.

  • animaluvr

    I had a bird mite infestation in July 2012 – two birds had gotten into the drop ceiling of the closet in the apt I rent and died. It was the most horrendous, painful, and sanity-testing thing i’ve ever been through.

    I knew I was being bit by something – the bites would burn like hell and itch, I could tell my poor critters were being bitten (i could see their skin ‘move’ and they were clearly uncomfortable), but I could never find the bugs or figure out what the culprit was. It got to the point that people – and I – thought I was losing my mind! I couldn’t sit still or lie down without being chowed on, but i could never actually SEE the bugs, so I doubted myself.

    Finally, I just started cleaning, in an effort to rid my place of whatever was in it. I threw out every piece of fabric I owned –> my bed, my rugs, my couch/chairs, EVERYTHING. All of my clothes was placed in plastic bags. I didn’t sleep for almost three weeks (since I couldn’t lie down or relax), I scoured the internet for information on any tiny black biting bugs, finding little that could actually help me (other than “get an exterminator”). The bugs would attach to my clothes and follow me into the car, biting my feet as i drove. I seriously thought i was losing my mind or being attacked by the devil.

    I was on the edge of a total break, but then, after thoroughly cleaning my closet, I noticed a couple of feathers, and checked the loose tiles. I finally found one of the dead birds and, with that knowledge, I was able to figure out what the problem was. Once the dead birds were removed, that went a long way towards relieving the situation. After about 2-3 weeks, the last traces of the mites were gone and i was FINALLY able to relax in my house again.

    My doctor and my neighbors and friends/family were not helpful, writing off my concerns as if i belonged in a white, padded room hugging myself. That was one of the most maddening parts – i KNEW i wasn’t imagining what was happening to us (me and the critters). The dismissal by everyone I tried to get help from made me feel even more depressed and alone. It was a dark time.

    It’s been months, but i’m still paranoid. Every time i feel a burning, or see my cats act ‘strange’, like they’re being bit, I can feel panic setting in. Sometimes i think i still see one here and there, and I check every little black dot i run across, terrified of going through this again. My landlord blamed my cats for bringing in the dead birds (and placing them in the ceiling? I doubt it…), so I fear this could happen again.

    • http://www.thesurvivaldoctor.com James Hubbard, M.D., M.P.H.

      animaluvr. thanks. I can only imagine your frustration, and sympathize with your new, but rightly founded, paranoia.

  • Tracey Ledel

    My friends had a severe infestation of bird mites in their home. They are very slowly and painfully clearing it up. Now they have an almost PTSD reaction to any kind of itching, even if they know it’s not from the mites! I wonder how many people develop this psychosis after an actual skin problem is resolved.

    • animaluvr

      From experience, I can completely understand their reaction – I have it myself!

    • http://www.thesurvivaldoctor.com James Hubbard, M.D., M.P.H.

      I don’t know, Tracey, but good question.

  • http://pamelafarms.com Alicia

    It is not some type of parathesia?

    • http://www.thesurvivaldoctor.com James Hubbard, M.D., M.P.H.

      Alicia, that’s always possible. I cite a couple of reasons in another comment on why it probably is not. But, maybe some day we’ll know better.

      • Janis

        I am not quite so quick to disbelieve people who have Delusional parasitosis. They may have some invisible illness or something like Candida. I once had parathesia’s that went away after I treated myself for candida. I saw specialists and top neurologists in San Francisco, had MRI’s, nerve conduction tests, lyme’s tests, etc. and they could find nothing that caused the parathesia’s. It often felt like bugs crawling under my skin. Since I do have fibromyalgia/ME/CFS, I am always looking to rule this or that symptom out or find something to help with the symptoms. After discussing candida with my doctor, I decided to treat it and lo and behold the parathesia’s went away! I was SO happy! Still have neuropathy, but the tingling, weird buggy feeling and the little shocks I had all over my body went away. If I were a doctor, I would at least test/treat the person for candida before I sent them away or gave them a useless prescription that might aggravate the candida. Many doctor’s don’t believe in candida, so find a new doctor that does and at least rule that out if you have parathesia’s or buggy feelings all over your body!

        • http://www.thesurvivaldoctor.com James Hubbard, M.D., M.P.H.

          Thanks, Janis.

  • Grace

    Please google Morgellens disease and the possible connection with a substance inserted into a crop to make another GMO. Also I believe the FDA has recently acknowledged the existence of this disease. Yes, as a prof nurse I know there are cases as you have written about, however patients must look further as there is much more info available on the causes of the condition.

    • http://www.thesurvivaldoctor.com James Hubbard, M.D., M.P.H.

      TS and Grace, I stand corrected. The first study cited in the link does think a bacteria is involved. The second one, though, states they saw fibers. I’ll stay tuned. Now there should be follow-up studies with other independent researchers to see if they can confirm this.

      Thanks

      • TS

        Yes…I am interested to see what comes from the various studies on Morgellons. I’d also like to see some studies done on the delusional paracitosis thing too.

    • http://www.thesurvivaldoctor.com James Hubbard, M.D., M.P.H.

      Grace, someday, maybe something will found, maybe nerve endings are getting irritated, but right now, there is nothing we know of that might be causing these rare cases. Certainly no sign of fibers or other physical objects, no matter how tiny. Thanks for bringing it up.

    • http://www.thesurvivaldoctor.com James Hubbard, M.D., M.P.H.

      Grace, I thought someone would bring up Morgellons disease and there’s never been the slightest smidgen of evidence that something physical is causing it. No one in the scientific arena, including the FDA has ever stated otherwise.

      • just2smart

        shall I comment on this… the new age of GMO’s is something to admire it is where bacterium is genetically modified with dna codes they are then introduced to cells where they can migrate into the mitochondria where they deposit this new dna….whats to say that this bacterium isn’t loose in the natural word and mutating other bacterium and or encoding other cells causing mutations…which of course is where something like Morgellons would be created and if it is so new how do they know how to identify or treat it …however they(FDA/CDC which are infested with the throws of big pharma, chemical company throw-backs) are reluctant to see a simple in your face pandemic like Lyme disease and are still reluctant to test for it because they are not in an area for which its known to exist… like people don’t travel… I am sick of the mistaking of authority as truth rather the truth as the authority. Parasitic psychosis is not contagious and when one states that others in the family are having the same symptoms its time to throw the psychosis theory out the window.

      • TS

        I’m not so fond of the FDA because they are wrong on way too many occasions. There is an article telling about Morgellons. It says there has been research at a State University of New York. I’d be glad to share the link with you if you like.

        • http://www.thesurvivaldoctor.com James Hubbard, M.D., M.P.H.

          TS, I think I know what you’re talking about. Someone found some association between Morgellons and some sort of bacteria. If it’s something else, please share the link. It’s true that association studies can be the start of something but are, by no means, proof. More times than not, they are just coincidences. Coffee is an example. Coffee drinkers have been found to have increased incidences of this and that disease, and sometimes found to have decreased incidences of this and that, but most turn out to be coincidences. It was going around for a long time that vasectomies were associated with increased prostate cancer. More focused studies have shown that not to be true. The association studies have to be followed up with better, more focused studies so only time will tell, but I wouldn’t be surprised if others finds different associations with one or more other things and Morgellons in years to come–most, or all to end up being coincidence. For now, it’s hard for me to get past that the studies I have seen that have actually taken skin biopsies of these people have found no fibers or anything else that they claim to have–just evidence of inflammation from the scratching.

  • TS

    Is it possible there is some type of nerve damage that modern medicine has just not figured out yet? I remember back when I was young and went to the doctor for severe menstrual cramps, he told me “it’s all in your head”, and I was advised to take Tylenol (which was not effective at all). These days doctors know different. Maybe it is some inflammatory response to something or another. I do not totally give up on the people with this disorder because I remember being told what doctors once thought was “the truth”. I hope a remedy or solution is found for them. It very well could be some sort of foliculitis.

    • http://www.thesurvivaldoctor.com James Hubbard, M.D., M.P.H.

      TS, you’re right, there’s always a chance that something’s causing the itching. In my post I think I mentioned to rule everything that we can and know about that could cause symptoms. But, there’s a chance it might be something we don’t know how to diagnose. The problem is, if you mention this, you reinforce them that it’s, for sure, something physical. A couple of things go against the theory it could be something physical. 1. They are convinced specks of non-living matter are what’s biting them. 2. Anti-psychotic drugs are the meds that, as to date, help.

      • TS

        There are some psychtropic drugs that are used for pain these days that in previous years were not. Take Cymbalta for instance. I can imagine why they’d also be used for itching or at least a perception of itching. I think psychotropics are also given for morgellons.

  • http://FloridaHillbilly.com db

    Would some sort of placebo help? If it’s all in their head, wouldn’t a cure that was also fictional help in some way?

    • http://www.thesurvivaldoctor.com James Hubbard, M.D., M.P.H.

      db, it doesn’t help. Giving them actual medicine for, say, scabies or lice, never helps either. In fact, experts say don’t try to make them better by playing into their delusion. It only reinforces their delusion.

      • Matt

        I was interested in the same thing, some sort of placebo ‘ointment’. However, I can see your point James, after all I suppose it’s (also) a fine line to tread, fooling your patients.